Wow! It has been a busy week. Monday, we got back into the swing of things w/ Avery's regular therapy & appointment schedule since his surgery. I think missing a couple of weeks has caused a bit of a relapse, but I have to remind myself, babysteps. He was so excited yesterday to finally be allowed back in his walker! He quickly had my kitchen/dining room in disarray as he turned over my trash can, scooted my chairs, and pulled my dishtowels in the floor. Tuesday in hematology, Avery's doctor told us that we can't continue to keep him on the high doses of steroids he has been on, basically since July '09. Avery responds really well to the high dose he has been on, but there are just too many side effects (osteoporosis, joint/muscle circulation issues, stunted growth, and organ problems, just to name a few). So beginning yesterday, we're trying an every other day steroid regimen, and dropping the dose over the next few weeks. If Avery responds well to the low dose, it will be AWESOME! However, if he doesn't...I don't even want to think about that. This has been the focus of my prayers this week.
Bryson, on the other hand, continues to amaze me. It is bittersweet to watch him grow up. I know, I know, he's only 3. But, he's becoming a little boy; he's not my baby anymore! Yesterday, he came home from preschool telling us how he learned about squares and ducks. Squares and ducks today, spelling and multiplication tomorrow! I'm so proud of the sweet, smart kiddo he's turning out to be. I thought the terrible twos (more like terrible 18 months to 3) would never end. Some days I'm not sure they have. Tonight he said, "Mommy, Daddy somtimes says 'stupid' but I don't." Hmmm...maybe his dad is to blame!
In the middle of the night last night, Phillip woke up w/ a stomach bug. I immediately quarantined him in the spare room in the basement and sprayed lysol or used a clorox wipe on every square inch of my house. What is it about it that makes my house suddenly feel germy? Anyway, I have checked on him a few times (with my mouth covered) and called him on his cell phone. Aren't I a good nurse? Actually, my biggest concern is passing this germ onto my boys. I'm hoping to avoid that. I guess time will tell... Bryson hadn't made the connection that Phillip was staying down stairs until tonight. He heard Phillip and said, "Daddy, is that you down there?" Of course Phillip responded. Bryson started running full speed toward the stairs until I stopped him, explaining that Daddy was sick, and he was sleeping downstairs tonight. Bryson said in his sweetest voice, "But Daddy, don't you wanna come up here w/ me? I'll care for you!" I know it took every ounce of strength to make Phillip stay down there after that!
So, that's it for my exciting week. All 3 of my guys are in the bed, although I hear the smallest one making noise. He cackles at the top of his lungs every few minutes. He must see things that we don't, cause his world sure is funny! Hopefully, he'll quiet soon, and I can hit the hay. Later.......
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