All I Want for Christmas...

In a world where people pepper spray unsuspecting shoppers to keep them from getting in the way of a bargain, I think it's safe to say that many have lost sight of the important things in life. I think I've been guilty as well...not of pepper-spraying, but of just getting caught up in life. This year has certainly put things back in perspective for me though.

Last night, a young girl only 3 doors down from Avery in the BMT unit lost her fight for her life. As I watched that family huddled together crying, I couldn't help but feel like crying myself and realize how much I have to be thankful for.

If all goes well, Avery is going to be discharged today to the Ronald McDonald House. He's getting a red cell transfusion as I write, and his ugly rash has been seen by 3 specialists who still have no clue what it is, but all agree it isn't GVH, THANK GOD! With his history of the last two times being discharged resulting in a quick readmission, I'm simply hoping that the third time is a charm. I'm OVERJOYED at the thought of my family being together. I'll admit...I'm nervous. Avery is pretty high maintenance these days. He's fussy, likes to be held, and requires several iv meds, oral meds, and 20 hour TPN throughout the day. Not to mention the fact that all the extra fluids means more than usual diaper changing among other things. I'm also nervous about the germs he's going to be exposed to, even though we're in isolation at the Ronald McDonald House, and you better believe I'll be taking that temp pretty often. But I just can't wait to get us all together, chaos and all.

Christmas for us is simple this year. We've been separated, and I've not done much shopping. But the gifts and decorations, although lots of fun, aren't what it's all about anyway. We have a little Charlie Brown tree with a few presents waiting, but above all, we have each other.

May we cherish the moments we have together and remember that day so long ago when Joseph and Mary were far from the comforts of home when baby Jesus was born in a lowly stable. I'm sure they were frightened and worried, but also so thankful and in awe of the precious baby they were blessed with.

It may sound cliche', but seriously, the only thing I want this year is to be able to spend time with my beautiful family, and see my little Avery enjoy the day pain-free.

I'll update you with the details of what I pray is going to be an amazing time with my family and hopefully, a turning point for Avery's health.

Love to you all on this Christmas weekend!
Bethany